Tallulah Becza-Levitt was just four years old when her preschool teachers first noticed that she was limping. Her parents took her to the Children's Hospital of Philadelphia (CHOP), one of the country's leading pediatric specialists where they received a diagnosis no parent should ever have to hear: neurofibromatosis, an incurable condition in which tumors grow uncontrollably on the body's nerves. Since that day, Becza-Levitt has undergone seven surgeries, each to reduce tumor mass in her leg, where the tumor wraps around the sciatic nerve. "Typically, I go two to five...